Tuesday, August 12, 2008

15 Minutes for Women's Health


Telling It Like It Is

I am sharing some very personal information in the hopes that another woman might benefit from my experience. Doctors, who should be our advocates in the health care system, more than likely are rewarded for NOT ordering tests. For this reason, women suffer from hypothyroidism, perimenopause Hepatitis C and heart disease without being diagnosed.


Past Health Issues

Hypothyroidism

My mother had hypothyroidism, so I knew it ran in my family. Yet, I had to demand that my doctor, who had also been her doctor, test me for hypothyroidism. He did not want to write the order for the blood test. He said I did not have any symptoms. I insisted. I DID have hypothyroidism.

After I was on medication for hypothyroidism, the doctor never ordered any blood work for my thyroid levels. Three years after I started the thyroid medicine, I went in for thyroid surgery. They did blood work as part of normal pre-op procedure and my thyroid level was so low the surgeon did not want to operate.

Afterwards, I told my primary care doctor about my blood levels. and he said, "Just double the dosage, you will be fine." I told him I needed blood work so that WE would know my blood levels and HE could prescribe the proper amount of medicine. Double the dose would have been too much.

Perimenopause

This is the same doctor that let me go through perimenopause without treatment for 5 years because he believed I was too young to be entering menopause. I finally demanded a referral to a specialist and she required that I undergo an immediate D&C to stop the bleeding. I had bled so much that I was seriously anemic.


Current Heath Problems

Hepatitis C

I have recently been diagnosed with Hepatitis C. I have no idea how long I have had this disease nor how I acquired it. This is one of those diseases that people do not discuss and doctors do not normally diagnose.

I was extremely ill over a year ago and went to the emergency service at the Veteran's Administration Hospital in San Antonio. Evidently, they did a blood test for Hepatitis C, among others, but NO ONE followed up on the test results, including my primary care physician.

I was not seen for a year in the VA system, even as follow up to emergency service. Instead, I was treated over the telephone until my normal appointment time. A YEAR LATER, I asked my primary caretaker about the results from all the tests during that emergency visit. The doctor is speeding through my test results on a computer screen that I cannot see. I made her slow down and explain each test result.

Thank God I did because the next thing she said was, "Well, you know you have Hep B and Hep C. Wait, you have Hep A as well." No, I did not know. I freaked. Then, reason reigned and I made her order new blood tests. After one month of waiting, I found that two tests were wrong. I do not have Hep A nor Hep B but I do have Hep C. Next, I was scheduled for a liver biopsy and over a month was gone waiting for the results. Next week, I will receive the results of the biopsy and will be started on treatment if I want to undergo 28 weeks of Interferon and Ribavarin.

I wonder how I got Hep C and why no doctor has ever diagnosed it before. I hate to think it has to do with the costs of blood tests and the state of insurance in the USA. I thank God that I evidently do not have a bad case, or I MIGHT BE DEAD BY NOW.

Heart Problems

No, thank God, I do not have heart problems. However, I have two girlfriends who have suffered heart attacks because they were never tested for or diagnosed as having heart problems. One friend survived; the other did not. I have heard of many other stories of women and heart disease.


What Is Going On?

Disturbing Trends

After the I had found another doctor than the male physician talked about above, I found out that under certain insurance plans, doctors who do not order excess testing and procedures are monetarily rewarded each year. That is why I was allowed to suffer with thyroid disease and perimenopause for years without treatment.

As for the Veteran's Administration system, I do not know what to tell you. Since I married Michael in 2003, I have had four different primary physicians at VA. There is NO continuity of care. Each time I have a new doctor, I have to explain my medicines and my understanding of my health, all in the normal 29 minutes given to each patient for their yearly exam.

Conclusions

More men than women are doctors. Most male doctors do not have an understanding of women's health issues. Managed care is a farce. You can die while under the treatment of one of these doctors.

Recommendations

Manage your own health care. Be aware of your family medical history and know what diseases run in your family. If you feel your doctor is not listening to you, ask for your records and move on to another doctor.

Keep your own medical records. I had copied the records when I changed doctors, but not since I moved to the VA system. If I had, I would have seen the test results and I might be free of Hepatitis C by now.

Community hospitals and companies like Life Line Screening hold screenings for different diseases and risk factors for disease. Your insurance does not pay for these tests. If you can scrape up the money, have these tests done.


Personal Note

I hope this helps you. I have other examples of shoddy medical care, but thyroid problems, heart disease, menopause and Hepatitis are life threatening and affect women. Be aware and take care.


16 comments:

Viv said...

I could not agree more with the message of your post: be your own advocate when it comes to medical care! Women, especially, have to be assertive with their doctors. And if you ever go into the hospital, have someone go with you and make sure they ask all the questions and demand all the answers when you can't because you are too sick.

Excellent post (I had to fight my thyroid tests, too, family history just like yours, and yes I have a thyroid problem!).

fat burning tips said...

i just want to say get well soon.because your details make me worried.thanks anyway because still you are worried about other person.your post proved that.

Christine said...

I agree with you 100%! I've had many problems with doctors, as had my family. This is one huge reason I am totally against universal health care. The government health programs are horrible... as you know from dealing with the VA. I've dealth with medicare, medi-cal (california welfare health program) and they are horrible as well. The government can not be trusted to run health care, neither can the insurance companies. We need to give the control back to the doctors and take away the control from the insurance companies!

I hope you can find a better doctor to take care of you. The one you have seems to be lacking in so many ways!

CyberCelt said...

@viv-Thanks for your thoughtful comment. I appreciate it.

@fat burning tips-Please leave your link to your blog next time. I appreciate your comment.

@christine-All I can do is warn people to watch out. We must all take care of our families and watch out for our health. Unfortunately, the only insurance I have is VA and with this diagnosis, I cannot buy private insurance. I have been ill for so long that I do not work outside the home. Wish me luck.

The Fitness Diva said...

I have had my own experiences with just trying to get an accurate diagnosis from several doctors for an inflamed node under my ear that's been there for years.
You really do have to be assertive and insistent for them to not brush you aside and to take it as seriously as you do. These days I'm looking into Chinese medicine and other alternatives to any health issues that might pop up. Going through our medical system as we know it can be an exhaustive, stressful and expensive process.

Health Articles said...

You really do have to be assertive and insistent for them to not brush you aside and to take it as seriously as you do. These days I'm looking into Chinese medicine and other alternatives to any health issues that might pop up. Going through our medical system as we know it can be an exhaustive, stressful and expensive process.

TaroPhoenix said...

Yes, you have to be informed and pro-active not only by being prepared for your office visit, but by following up on any prescription therapy. I try to plan my prescription pick-up for next day so I have time to google and learn everything about what I will be taking. I've saved myself more than once, from doctor prescribing wrong dosage to pharmacist error, it pays to be informed.
Use your 'puter, it gives you a head start - and continue to stand up with your questions.
And never, ever be left alone in a hospital, ever. That is Hospital Rule No. 1. The stories I could tell . . .

Gallery said...

I am feeling better to visit this site. Thanks for your kind ideas.

Jeff Iversen said...

Our health system is a farce. You must be proactive in making decisions about your healthcare. The Doctor is not in charge. YOU are. The Doctor is just part of the team. If you are uneasy about a diagnosis, you might want to get another opinion. Research and study as much as you can about your symptoms and your illness. Make educated choices with your own health. It may save your life some day.

Charla said...

We must be our own advocates. I have fibromyalgia and so does one of my friends. She was having a lot of health problems even though she had been going to a specialist for years. I finally talked her into going to my doctor (a lady doctor), and on her first visit to my doctor she was sent to have a sonogram done on her thyroid. Turned out she had thyroid CANCER which her doctor never found. We know it was an answer to prayers that she went to my doctor and is doing as well as she is today!

Jackie said...

Sorry to hear about your health. I have always found most doctors to be so busy they never have the time to follow up on anything.

Read a recent article about Hepatitis C. It is spreading worldwide like Tb and AIDS. Many are lucky though as they have developed antibodies against it. It is carried by blood products and even things like used razors and nail clippers and of course badly sterilized needles. You could have picked it up anywhere.

Hope the test results were good.

Anonymous said...

I had breast cancer and 15 years later same doctor I found a lump on the other side he said oh its not cancer well 6 months later I insisted he ultra sound it, cancer it was so from him waitin I had to go thru chemo and could have died but he was not concerned at all yes everyone know your body and insist on test good luck cyper and feel bettter soon

Menopause said...

It is so true that you must be the advocate for your health care. There is no one who cares more about your health than you do, and when you have a naggy feeling that you should get a check-up, DO IT! I too was told that I am too young for perimenopause, but when tested, all my female hormones were out of whack.

I have been reading through your blog and I will be sending prayers and healing energy your way tonight.
~Irene

Pamela Plumley said...

Wow! I know doctors can be lame-I'm glad I found a good one here in Tucson! I had thyroid problems at the age of 20, low, then it went sky-high by 83 and they had to radiate it out because the doctor kept changing the dose without recommending a specialist. I also have fibromyalgia, and in the early 90s hardly any doctors believed in that-I suffered since the age of 13 with headaches and 15 with neck pain. All those years with nothing but aspirin, since there was no acetaminophen then! Finally in 94, UC Davis in CA dxed the fibro! Something firm to stand on. I know what it's like to hurt or suffer with no one believing you or caring, even doctors. It's wrong...but I just trust God as much as I can every day! I'm sure you do the same.

mistipurple said...

Sending more positive energy to stay well. Thanks for this post. I am on thyroxine tablets and I am lax with them. I better get back to them religiously.

Dirty Butter said...

I am SO sorry to read of not only your serious health problems, but the shoddy way your doctors failed so miserably to treat you! It sounds like you had no more business taking over the Village than I had trying to keep it going!!

One of our daughters is on thyroid medicine. I will have to caution her to insist on the blood tests.

I've not been visiting blogs much at all, and it grieves me to see how sick you have been. I hope now that you are managing your own care that things will improve.

Did You Know Nutrisystem has a Program for Men?

Dave lost 50lbs NutriSystem mens weight loss